Resource Directory

Watch + Learn

Medicare and Caregiving (video)

http://www.healthinaging.org/public_education/tools_depression.php

Comprehensive description of depression; identification, treatment and management. Links and tips on talking with physician about depression.
800-563-4916

http://www.ahaf.org/alzheimers/

Program of the American Health Assistance Foundation
800-437-2423

http://www.alzfdn.org/Connect/careconnection.html

Free telephone support service designed for caregivers of individuals with Alzheimer's disease and related illnesses.
877-232-2992

http://www.alz.org/

Leading voluntary health organization in Alzheimer care, support and research.

800-272-3900

http://www.alznews.com/

Ageless Design Research Foundation updates its site each day with new articles and press releases relating to dementia

http://www.alzheimers.org/

ADEAR offers free publications and information on most aspects of Alzheimer’s disease
800-438-4380

http://www.richardtaylorphd.com/

Richard Taylor, diagnosed with Alzheimer’s disease at age 61, gives a first person look at Alzheimer’s disease. Account of his slow transformation and deterioration and the growing division between his world and the world of others. Website includes a newsletter.

http://alzonline.phhp.ufl.edu/

AlzOnline provides presentations on issues related to caring for someone with Alzheimer’s in PowerPoint, video and/or audio as well as other educational materials.

http://www.cancer.org/

Nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
1-800-ACS-2345

http://www.theacpa.org/

916-632-0922

http://www.diabetes.org/

Mission is to prevent and cure diabetes and to improve the lives of all people affected by diabetes. Funds research, publishes scientific findings, provides information and other services to people with diabetes, their families, health professionals and the public.
800-342-2383

http://www.amfar.org/

amfAR is dedicated to ending the global AIDS epidemic through innovative research.
800-39-AMFAR (392-6327)

http://www.americanheart.org/

National voluntary health agency whose mission is: "Building healthier lives, free of cardiovascular diseases and stroke."
800-AHA-USA1 (242-8721)

http://www.kidneyfund.org/

800-638-8299

http://www.liverfoundation.org/

800-465-4837

http://www.apdaparkinson.org/

800-223-2732

http://www.strokeassociation.org/

The American Stroke Association, a division of the American Heart Association, offers a wide array of programs, products, and services designed for patients, caregivers, and professionals.
888-478-7653

http://www.alsa.org/

800-782-4747

http://www.arthritis.org/

800-283-7800

http://www.bianys.org/

800-444-6443

http://www.cancercare.org/

Free professional support to anyone affected by cancer.
800-813-4673

http://www.cje.net/

For more than 35 years CJE SeniorLife (CJE) has provided quality programs and services to older adults, their families and caregivers throughout metropolitan Chicago and its suburbs. Resources range from healthy aging programs to care management and home health services, all of which address the issues that often accompany aging.

CJE SeniorLife Adult Day Programs provide older adults with a supervised, structured program in a group setting focusing on the potential of each participant and giving caregivers a respite.

http://www.deadmendonteatchicken.com/

Blog that discusses the care of a person with dementia. Here you can tell your stories, vent your frustrations, have a laugh, have a cry, share a lesson or useful tip, and learn from others going through the same thing.Also includes helpful articles on a variety of topics concerning dementia, caregiving, and taking care of yourself.

http://www.disability.gov/

http://www.alzheimers-illinois.org/pti/comfort_care_guide.asp

A Guide for Families of People with Dementia Living in Care Facilities. Provided by the Alzheimer's Association-Greater Illinois Chapter.
800-272-3900

http://www.efa.org/

800-332-1000

http://www.guildfortheblind.org/

Newly formed Caregiver Support Group for family, friends and caregivers of loved one who are blind or have impaired vision.
312-236-8569

http://www.aboutincontinence.org/

This website provides an overview of the causes of bowel incontinence, as well as treatment and management.

http://www.knowitalz.com/

Community of caregivers looking for the bright side of a very dark disease. Provides information, resources, connections to other caregivers, and most importantly a few laughs.

http://www.lupus.org/newsite/index.html

800-558-0121

http://www.medicalert.org/

Not for profit alerts, including i.d. bracelets
888-633-4298

http://www.nlm.nih.gov/medlineplus/

MedlinePlus offers trusted health information from the U.S. National Library of Medicine and the National Institutes of Health

http://www.aphasia.org/

This site provides education information about aphasia as well as a nationwide listing of support groups.

http://www.nia.nih.gov/Alzheimers

The National Institute on Aging offers tips for Alzheimer’s Caregivers with brief, bulleted lists of suggestions and resources.

Also offers "So Far Away: Twenty Questions for Long Distance Caregivers"

http://www.nmha.org/

1-800-969-6642

http://www.nmss.org/

800-344-4867

http://www.parkinson.org/

This foundation site, designed for both professionals and consumers, provides information on Parkinson’s research, events, and resources.

http://www.scihotline.org/

800-526-3456

http://www.stroke.org/

The National Stroke Association links site visitors to programs and support groups designed for stroke survivors and their families.

http://www.brain.northwestern.edu/

This center is located in Chicago, IL, offers visitors to the site detailed information Alzheimer’s disease and related dementias.

http://www.pdcaregiver.org/

This site provides extensive testimonials from other caregivers and links to a wide variety of resources.

http://www.pdf.org/

This site provides basic information about what to expect with the disease, links to other resources, and an online caregiver forum.

http://www.rush.edu/

The Rush Alzheimer’s Disease Center, located in Chicago, IL, provides visitors with information on patient care services and educational programs.

312-942-5000

http://www.strokeinfo.org/

Education, advocacy and awareness for stroke and its treatment.

http://www.amazon.com/Art-Dementia-Care-Daniel-Kuhn/dp/140189951X/ref=cm_cr_pr_product_top

Thoughtful book by Daniel Kuhen and Jane Verity from The Alzheimer’s Association

http://www.strokecaregiver.org/

Online information resources on stroke, including link to the Stroke Caregiver Handbook.

http://www.uoaa.org/

800-826-0826

http://www.youngparkinsons.org/

The Young Parkinson’s Information & Referral Center provides information and support for Parkinson’s Sufferers who are still very active.