Resource Directory
The listings in this resource directory are intended to help you identify national and local Illinois sources and organizations that provide information and assistance on a broad range of caregiving related topics. Location, phone number, and a link to a website are provided whenever possible.
The resource directory is for resource purposes only and should not be viewed as an endorsement. Caregivinghelp.org recommends that you always conduct your own evaluation of organizations or individuals listed in any online directories. Every effort has been made to ensure that the information is current and accurate. Please let us know of new resources, updates or revisions to the resource directory.
Click any category below to find information on your area of interest. The search tool at the top of each page can also lead you to find information on a specific topic included within the caregivinghelp.org website.
Caregiving (62)
AARP: Caregiving Resource Center
http://www.aarp.org/health/caregiving/
Aging Parents and Common Sense
http://womenshealth.com/component/content/article/47-womens-health-access/869-editors-choice-aging-parents-and-common-sense
Aging Parents and Common Sense is a downloadable guide for adult children. Particularly relevant for “long distance” caring.
AgingCare.com
http://www.agingcare.com/
Find support, resources and information, as well as a place to connect with other caregivers
239-594-3235
AGIS Network
http://www.agis.com/
Full range of eldercare information for caregivers
866-511-9186
Always On Call
http://www.amazon.com/Always-Call-Families-Caregivers-Hospital/dp/0826514618
When Illness Turns Families Into Caregivers by Carol Levine (New York United Hospital Fund)
Alzheimer’s Association: Carefinder
http://www.alz.org/carefinder/index.asp
The Alzheimer’s Association’s Carefinder offers an interactive care planning tool for dementia caregivers.
800-272-3900
24/7
American Medical Association Guide to Home Caregiving
http://www.amazon.com/American-Medical-Association-Guide-Caregiving/dp/0471414093
American Red Cross
http://www.redcross.org/
Training programs for family caregivers
202-303-4498
ARCH National Respite Network and Resource Center
http://archrespite.org/
Resources and information, including respite locator program
800-473-1727
Caregiver Cornnerstone
http://www.partnersagainstpain.com/pain-caregiver/tips.aspx
Caregiving for someone who experiences chronic pain.
Caregiver Online Group
http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=486
For caregivers of adults. Sponsored by Family Caregiver Alliance.
Caregiver Survival Resources
http://www.caregiver911.com/
Caregiver.com
http://www.caregiver.com/
Caregiver.com’s Regional Resources page allows you to search by state to locate support groups and other resources specific to your region. It is an online magazine for caregivers
800-829-2734
Caregiverstress.com
http://www.caregiverstress.com/
Home Instead Senior care website to help family caregivers find ways to cope with stress.
Caregiving 101
http://www.familycaregiving101.org/
Web-based training courses on various caregiving issues.
Caregiving.com
http://www.caregiving.com/
CarePages
http://www.carepages.com/
CarePages websites are free patient blogs that connect friends and family during a health challenge
Caring for Yourself While Caring for Others
http://www.amazon.com/Caring-Yourself-While-Others-Caregivers/dp/0533128765
A Caregiver’s Survival and Renewal Guide by Lawrence Brammer and Marian Bingea (New York, Vantage Press)
Caring for Yourself While Caring for Your Aging Parents
http://www.amazon.com/Caring-Yourself-While-Aging-Parents/dp/0805079750
How to Help and How to Survive by Claire Berman (Henry Holt & Co.)
Caring From a Distance
http://www.youtube.com/user/caringfromadistance
Non profit organization for long distance caregivers where you find the local resources your loved one requires when you live away
202-895-9465
Caring.com
http://www.caring.com/
Provide information and resources to help you to make better decisions, save time, and feel more supported.
Center for Assistive Technology
http://www.assistivetech.net/
Center for Assistive Technology
404-894-4960
City of Chicago’s Resources for Seniors and Caregivers
http://www.cityofchicago.org/city/en/depts/fss/provdrs/senior/svcs/caregiving_assistanceservices.html
City of Chicago programs and web-based resources including information on elder abuse, domestic violence, grandparents raising grandchildren, health, and finances.
CJE SeniorLife
http://www.cje.net/
For more than 40 years CJE SeniorLife (CJE) has provided quality programs and services to older adults, their families and caregivers throughout metropolitan Chicago and its suburbs. Resources range from healthy aging programs to care management, residences, and Parkinson's Disease Services, all of which address the issues that often accompany aging.
Coalition of Limited English Speaking Elderly
http://clese.org/
Instructional videos, reading demonstrations, and information on citizenship. "How-to" and fact sheets for persons assisting a loved one to learn English.
312-461-0812
Disability.gov
http://www.disability.gov/
Empowering Caregivers
http://www.care-givers.com/
This web site, developed by a previous caregiver, primarily focuses on self care and empowerment.
Family Caregiver
http://www.thefamilycaregiver.org/
Call for support 800-896-3650
National Family Caregivers Association help line available 9”00 – 5:00 pm Eastern time Monday through Friday.
Family Caregiving 101 is a website that has been designed as a tool for caregivers. Find assistance, answers, new ideas and helpful advice — for you and your loved one. Includes message board.
Family Caregiver Alliance
http://www.caregiver.org/
Family Caregiver Alliance serves as an advocate for all family caregivers throughout the U.S. Includes Family Care Navigator.
Family Medical Leave Act
http://www.dol.gov/whd/fmla/
Eligibility for leave to care for an immediate family member (spouse, child, or parent) with a serious health condition
Familycare America
http://www.familycareamerica.com/
Full Circle of Care
http://www.fullcirclecare.org/
Support, education, information, and assistance needed to support your efforts to keep your older family members living at home in a secure and loving environment for as long as possible.
Healthy Caregiver
http://www.healthycaregiver.com/
HelpGuide.org
http://www.helpguide.org/
This site has a section on “Seniors and Aging: which provides information on a variety of health and caregiving issues.
If Only I’d Had This Caregiving Book
http://www.amazon.com/Only-Had-This-Caregiving-Book/dp/1425909744/ref=sr_1_1?ie=UTF8&qid=1264539442&sr=8-1
Maya Hennessey (Authorhouse)
Johnson and Johnson’s Strength for Caring
http://www.strengthforcaring.com/
Johnson & Johnson provides an online caregiving manual, café chat rooms as well as information on daily care.
Comprehensive website designed to provide family caregivers with a broad range of expert content and information, an emerging on-line community, daily inspiration, and much needed support.
866-466-3458
LGBT Caring Community Online Support Group
http://lists.caregiver.org/mailman/listinfo/lgbt-caregiver_lists.caregiver.org
Lesbian, gay, bisexual and transgender caregivers of adults
Lotsa Helping Hands
http://www.lotsahelpinghands.com/
Lotsa Helping Hands is a simple and FREE way for friends, family, colleagues, and neighbors to assist loved ones in need.
Medic Alert
http://www.medicalert.org/
Not for profit alerts, including i.d. bracelets
888-633-4298
Medicare Basics for Caregivers
http://nihseniorhealth.gov/medicarebasics/faq/faqlist.html
NIH Senior Health’s easy to use website presents Medicare and management of illness information
National Adult Day Services
http://www.nadsa.org/
National directory of adult day services.
877-745-1440
National Alliance for Caregiving
http://www.caregiving.org/
The National Alliance for Caregiving is a non-profit coalition of national organizations and professional associations, focusing on issues of family caregiving. Informative videos.
National Association of Professional Geriatric Care Managers
http://www.caremanager.org/
Health and human services specialists who help families care for older relatives
520- 881-8008
National Institute on Aging’s Tips for Alzheimer’s Caregivers
http://www.nia.nih.gov/Alzheimers
The National Institute on Aging offers tips for Alzheimer’s Caregivers with brief, bulleted lists of suggestions and resources.
Also offers "So Far Away: Twenty Questions for Long Distance Caregivers"
National Private Duty Association
http://www.privatedutyhomecare.org/
Professional association has nationwide database of home care providers
Parkinson’s Caregiver
http://www.pdcaregiver.org/
This site provides extensive testimonials from other caregivers and links to a wide variety of resources.
Roslyn Carter Institute for Caregiving
http://www.rci.gsw.edu/
Educational programs, services and research for caregivers and more.
229-928-1234
Rush Generations
http://www.rush.edu/rumc/page-1112025074391.html
Rush University Medical Center program for older adults and people who care for older adults
800-757-0202
Share the Care
http://www.sharethecare.org/index.html
Designed to help caregivers create “caregiver families.” Free downloadable forms to help you create your caregiving family. Will help you take a group of individuals (comprised of friends, relatives, neighbors, coworkers, and acquaintances) and turn them into a "caregiver family" to provide individuals and families with the help they need to meet the daily challenges of caregiving.
Surviving Your Spouse’s Chronic Illness
http://www.amazon.com/Surviving-Your-Spouses-Chronic-Illness/dp/0805055738/ref=sr_1_1?ie=UTF8&qid=1264539267&sr=8-1
A Compassionate Guide by Chris McGonigle (New York, Henry Holt)
The Carebook
http://www.amazon.com/Carebook-Workbook-Caregiver-Peace-Mind/dp/0963073052/ref=sr_1_1?ie=UTF8&qid=1264538847&sr=8-1
Academic workbook for Caregiver Peace of Mind by Joyce Beedle and Louise Dunn (Lady Bug Press)
The Caregiver’s Home Companion
http://www.caregivershome.com/
Caregiving newsletter and searchable national resource directory
800-566-5193
The Caregiver’s Survival Handbook
http://www.amazon.com/Caregivers-Survival-Handbook-Without-Yourself/dp/0399529985
Alexis Abramson book on how to care for your aging parent without losing yourself
The Fearless Caregiver
http://www.amazon.com/Fearless-Caregiver-Loved-Still-Capital/dp/1931868565/ref=sr_1_1?ie=UTF8&qid=1264537103&sr=8-1
Practical, sympathetic and comprehensive guide shows caregivers how to be an informed, effective and fearless caregiver while still having time for yourself by Gary Barg
The Labryinth of Caregiving
http://www.gailsheehy.com/caregiving.php
Contemporary author Gail Sheehy, AARP Caregiving Ambassador provides personal discussions on caregiving issues
The Resourceful Caregiver
http://www.amazon.com/Resourceful-Caregiver-Helping-Caregivers-Themselves/dp/0815155565
Helping Family Caregivers Help Themselves (NFCA, Mosby)
To Love What Is: A Marriage Transformed
http://www.amazon.com/Love-What-Marriage-Transformed/dp/0374532052/ref=sr_1_1?ie=UTF8&qid=1264537908&sr=8-1
Alix Kates Shulman’s account of her life with her husband after a brain injury. She must learn to care for him while not losing herself.
To Survive Caregiving
http://www.amazon.com/Survive-Caregiving-Daughters-Experience-Doctors/dp/0741437252
A Daughter's Experience, A Doctor's Advice on Finding Hope, Help and Health by Cheryl Woodson (Infinity Publishing)
Video Caregiving
http://videocaregiving.org/
Visual education tool for family caregivers. Real life stories to better understand and deal with caregiving situations.
Well Spouse Association
http://www.wellspouse.org/
The Well Spouse Association site designed for caregivers who are caring for a spouse. Support husbands, wives and partners of ill and/or disabled.
800-838-0879
Your Eldercare Consultants are experts in caregiving. The staff will guide you through the transitions and challenges of aging.
773 508 1015