Resource Directory

caregivinghope.org expert advice on caregiving The listings in this resource directory are intended to help you identify national and local Illinois sources and organizations that provide information and assistance on a broad range of caregiving related topics. Location, phone number, and a link to a website are provided whenever possible.
The resource directory is for resource purposes only and should not be viewed as an endorsement. Caregivinghelp.org recommends that you always conduct your own evaluation of organizations or individuals listed in any online directories. Every effort has been made to ensure that the information is current and accurate. Please let us know of new resources, updates or revisions to the resource directory.

Click any category below to find information on your area of interest. The search tool at the top of each page can also lead you to find information on a specific topic included within the caregivinghelp.org website.

Aging (16)

Administration on Aging

http://www.aoa.gov/

The Administration on Aging (AoA) site provides a comprehensive overview of a wide variety of topics programs and services.Comprehensive overview of a wide variety of topics, programs and services related to aging.
202.619.0724

Age Options

http://www.ageoptions.org/

Connects older adults 60+ with community based resources and options in health, benefits, finances, housing and home maintenance.
800.699.9043

AGS Foundation for Health in Aging

http://www.healthinaging.org/index.php

Education, research, and health tools from the American Geriatrics Society.

American Association for Geriatric Psychiatry

http://www.aagponline.org/

Information for adults coping with mental health issues and aging
301.654.7850

American Geriatric Foundation

http://www.healthinaging.org/

Builds a bridge between the research and practice of Geriatrics and the Public, and advocates on behalf of older adults and their special health care needs. List of geriatric physicians by geographic area.
800.563.4916

Chicago Department of Family & Support Services

http://www.cityofchicago.org/city/en/depts/fss.html

Link to eldercare service providers in the City of Chicago and throughout the nation. Central Information and Assistance is located in City Hall with five community locations in each regional senior center. The five area centers present a variety of enriching and enjoyable cultural, educational, health, and fitness programs for adults age 55 and older.
312.744.4016

CJE SeniorLife

http://www.cje.net/

For more than 40 years CJE SeniorLife (CJE) has provided quality programs and services to older adults, their families and caregivers throughout metropolitan Chicago and its suburbs. Resources range from healthy aging programs to care management, residences, and Parkinson's Disease Services, all of which address the issues that often accompany aging.

CJE SeniorLife Adult Day Programs provide older adults with a supervised, structured program in a group setting focusing on the potential of each participant and giving caregivers a respite.

CJE SeniorLife Resource Centers
CJE SeniorLife senior services specialists provides FREE information, assistance and advocacy in these areas. Crime victim assistance, Emergency food and shelter program, Food stamps, Health insurance, Home repair, Medicaid, Medicare, RTA reduced fare, Social security, Prescription drug programs.
773.508.1000

Matter of Balance: CJE Program on Fall Prevention
Goals are for the older adult to achieve substantial gains in self confidence, sense of control and reduced fear and increase in muscle strength, flexibility and balance through regular physical activity.
773.508.1089

Cook County Assessor’s Office

http://www.cookcountyassessor.com/

The Cook County Assessor’s office administers the homeowner, senior citizens, and senior citizen assessment freeze exemptions.
312.443.7550

Eldercare Locator U.S. Administration on Aging

http://www.eldercare.gov/

Locate local agencies, in every U.S. community that can help older persons and their family’s access home and community-based services such as transportation, meals, home care, and caregiver support services.
800.677.1116

ElderCarelink

http://www.eldercarelink.com/

Provide free referral service for eldercare needs.

Illinois Department on Aging

http://www.state.il.us/aging

Listing of variety of state programs and services, including adult day services, Alzheimer’s Association chapters, area agencies on aging, case management, older adult services and resource centers.
800.252.8966

Life Matters Media

http://www.lifemattersmedia.org/

Information, resources, communication and experiences of those living their final days fully. A community for people facing the end of life and for those who care for them.

Communication
By providing a platform for the sharing of information, resources, communication and experiences of those living their final days fully, the vision of Life Matters Media is to create a community for ones facing the end of life and for those that care for them. Ultimately, we seek to foster a greater understanding of the capacity that end of life decisions have to nurture the human spirit.
- See more at: http://www.lifemattersmedia.org/#sthash.zbdUDVWD.dpuf

National Institute of Health Senior Health

http://NiHseniorhealth.gov/

Comprehensive medical information on senior health

Northeastern Illinois Area on Aging

http://www.ageguide.org/

Serves residents of DuPage, Grundy, Kane, Kankakee, Kendall, Lake, McHenry, and Will counties. Information on local events, available resources, advocacy, and caregiver support.
800.528.2000

Talking with Your Doctor

http://www.nia.nih.gov/health/publication/talking-your-doctor-guide-older-people

Order a free copy of Talking to Your Doctor: A Guide For Older People

Thirdage.com

http://www.thirdage.com/

Baby Boomer Health, Aging and Retirement

Caregiving (61)

AARP: Caregiving Resource Center

http://www.aarp.org/home-family/caregiving/

AgingCare.com

http://www.agingcare.com/

Find support, resources and information, as well as a place to connect with other caregivers

239-594-3235

AGIS Network

http://www.agis.com/

Full range of eldercare information for caregivers
866-511-9186

Always On Call

http://www.amazon.com/Always-Call-Families-Caregivers-Hospital/dp/0826514618

When Illness Turns Families Into Caregivers by Carol Levine (New York United Hospital Fund)

Alzheimer’s Association: Carefinder

http://www.alz.org/care/alzheimers-dementia-care-housing.asp

The Alzheimer’s Association’s Carefinder offers an interactive care planning tool for dementia caregivers.
800-272-3900
24/7

American Medical Association Guide to Home Caregiving

http://www.amazon.com/American-Medical-Association-Guide-Caregiving/dp/047141409...

John Wiley & Sons

American Red Cross

http://www.redcross.org/

Training programs for family caregivers
202-303-4498

ARCH National Respite Network and Resource Center

http://archrespite.org/

Resources and information, including respite locator program
800-473-1727

Caregiver Cornnerstone

http://www.partnersagainstpain.com/pain-caregiver/tips.aspx

Caregiving for someone who experiences chronic pain.

Caregiver Online Group

http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=486

For caregivers of adults. Sponsored by Family Caregiver Alliance.

Caregiver Survival Resources

http://www.caregiver911.com/

Caregiver.com

http://www.caregiver.com/

Caregiver.com’s Regional Resources page allows you to search by state to locate support groups and other resources specific to your region. It is an online magazine for caregivers
800-829-2734

Caregiverstress.com

http://www.caregiverstress.com/

Home Instead Senior care website to help family caregivers find ways to cope with stress.

Caregiving 101

http://www.familycaregiving101.org/

Web-based training courses on various caregiving issues.

Caregiving.com

http://www.caregiving.com/

Careguide.com

https://careguide.com/

CarePages

https://www.carepages.com/

CarePages websites are free patient blogs that connect friends and family during a health challenge

Caring for Yourself While Caring for Others

http://www.amazon.com/Caring-Yourself-While-Others-Caregivers/dp/0533128765

A Caregiver’s Survival and Renewal Guide by Lawrence Brammer and Marian Bingea (New York, Vantage Press)

Caring for Yourself While Caring for Your Aging Parents

http://www.amazon.com/Caring-Yourself-While-Aging-Parents/dp/0805079750

How to Help and How to Survive by Claire Berman (Henry Holt & Co.)

Caring From a Distance

http://www.youtube.com/user/caringfromadistance

Non profit organization for long distance caregivers where you find the local resources your loved one requires when you live away
202-895-9465

Caring.com

http://www.caring.com/

Provide information and resources to help you to make better decisions, save time, and feel more supported.

Center for Assistive Technology

http://www.assistivetech.net/

Center for Assistive Technology
404-894-4960

City of Chicago’s Resources for Seniors and Caregivers

http://www.cityofchicago.org/city/en/depts/fss/provdrs/senior/svcs/caregiving_as...

City of Chicago programs and web-based resources including information on elder abuse, domestic violence, grandparents raising grandchildren, health, and finances.

CJE SeniorLife

http://www.cje.net/

Coalition of Limited English Speaking Elderly

http://clese.org/

Instructional videos, reading demonstrations, and information on citizenship. "How-to" and fact sheets for persons assisting a loved one to learn English.
312-461-0812

Disability.gov

https://www.disability.gov/

Empowering Caregivers

http://www.care-givers.com/

This web site, developed by a previous caregiver, primarily focuses on self care and empowerment.

Family Caregiver

http://caregiveraction.org

Call for support 800-896-3650
National Family Caregivers Association help line available 9”00 – 5:00 pm Eastern time Monday through Friday.
Family Caregiving 101 is a website that has been designed as a tool for caregivers. Find assistance, answers, new ideas and helpful advice — for you and your loved one. Includes message board.

A Family Caregiver Speaks Up “It Doesn’t Have to be This Hard"
Suzanne Mintz’ book (co-founder of National Family Caregivers Association) of advice and tips for family caregivers.

Family Caregiver Alliance

http://www.caregiver.org/

Family Caregiver Alliance serves as an advocate for all family caregivers throughout the U.S. Includes Family Care Navigator.

Family Medical Leave Act

http://www.dol.gov/whd/fmla/

Eligibility for leave to care for an immediate family member (spouse, child, or parent) with a serious health condition

Familycare America

http://www.caregiverslibrary.org/home.aspx

Full Circle of Care

http://www.fullcirclecare.org/

Support, education, information, and assistance needed to support your efforts to keep your older family members living at home in a secure and loving environment for as long as possible.

Healthy Caregiver

http://www.healthycaregiver.com/

HelpGuide.org

http://www.helpguide.org/

This site has a section on “Seniors and Aging: which provides information on a variety of health and caregiving issues.

If Only I’d Had This Caregiving Book

http://www.amazon.com/Only-Had-This-Caregiving-Book/dp/1425909744/ref=sr_1_1?ie=...

Maya Hennessey (Authorhouse)

Johnson and Johnson’s Strength for Caring

http://www.strengthforcaring.com/

Johnson & Johnson provides an online caregiving manual, café chat rooms as well as information on daily care.
Comprehensive website designed to provide family caregivers with a broad range of expert content and information, an emerging on-line community, daily inspiration, and much needed support.
866-466-3458

LGBT Caring Community Online Support Group

http://lists.caregiver.org/mailman/listinfo/lgbt-caregiver_lists.caregiver.org

Lesbian, gay, bisexual and transgender caregivers of adults

Lotsa Helping Hands

http://www.lotsahelpinghands.com/

Lotsa Helping Hands is a simple and FREE way for friends, family, colleagues, and neighbors to assist loved ones in need.

Medic Alert

http://www.medicalert.org/

Not for profit alerts, including i.d. bracelets
888-633-4298

Medicare Basics for Caregivers

http://nihseniorhealth.gov/medicarebasics/faq/faqlist.html

NIH Senior Health’s easy to use website presents Medicare and management of illness information

National Adult Day Services

http://www.nadsa.org/

National directory of adult day services.
877-745-1440

National Alliance for Caregiving

http://www.caregiving.org/

The National Alliance for Caregiving is a non-profit coalition of national organizations and professional associations, focusing on issues of family caregiving. Informative videos.

National Association of Professional Geriatric Care Managers

http://www.caremanager.org/

Health and human services specialists who help families care for older relatives

520- 881-8008

National Institute on Aging’s Tips for Alzheimer’s Caregivers

http://www.nia.nih.gov/Alzheimers

The National Institute on Aging offers tips for Alzheimer’s Caregivers with brief, bulleted lists of suggestions and resources.

Also offers "So Far Away: Twenty Questions for Long Distance Caregivers"

National Private Duty Association

http://www.homecareaoa.org/

Professional association has nationwide database of home care providers

Parkinson’s Caregiver

http://www.pdcaregiver.org/

This site provides extensive testimonials from other caregivers and links to a wide variety of resources.

Roslyn Carter Institute for Caregiving

http://www.rci.gsw.edu/

Educational programs, services and research for caregivers and more.

229-928-1234

Rush Generations

http://www.rush.edu/rumc/page-1112025074391.html

Rush University Medical Center program for older adults and people who care for older adults

800-757-0202

Share the Care

http://www.sharethecare.org/index.html

Designed to help caregivers create “caregiver families.” Free downloadable forms to help you create your caregiving family. Will help you take a group of individuals (comprised of friends, relatives, neighbors, coworkers, and acquaintances) and turn them into a "caregiver family" to provide individuals and families with the help they need to meet the daily challenges of caregiving.

Surviving Your Spouse’s Chronic Illness

http://www.amazon.com/Surviving-Your-Spouses-Chronic-Illness/dp/0805055738/ref=s...

A Compassionate Guide by Chris McGonigle (New York, Henry Holt)

The Carebook

http://www.amazon.com/Carebook-Workbook-Caregiver-Peace-Mind/dp/0963073052/ref=s...

Academic workbook for Caregiver Peace of Mind by Joyce Beedle and Louise Dunn (Lady Bug Press)

The Caregiver’s Home Companion

http://www.caregivershome.com/

Caregiving newsletter and searchable national resource directory

800-566-5193

The Caregiver’s Survival Handbook

http://www.amazon.com/Caregivers-Survival-Handbook-Without-Yourself/dp/039952998...

Alexis Abramson book on how to care for your aging parent without losing yourself

The Fearless Caregiver

http://www.amazon.com/Fearless-Caregiver-Loved-Still-Capital/dp/1931868565/ref=s...

Practical, sympathetic and comprehensive guide shows caregivers how to be an informed, effective and fearless caregiver while still having time for yourself by Gary Barg

The Labryinth of Caregiving

http://www.gailsheehy.com/caregiving.php

Contemporary author Gail Sheehy, AARP Caregiving Ambassador provides personal discussions on caregiving issues

The Resourceful Caregiver

http://www.amazon.com/Resourceful-Caregiver-Helping-Caregivers-Themselves/dp/081...

Helping Family Caregivers Help Themselves (NFCA, Mosby)

To Love What Is: A Marriage Transformed

http://www.amazon.com/Love-What-Marriage-Transformed/dp/0374532052/ref=sr_1_1?ie...

Alix Kates Shulman’s account of her life with her husband after a brain injury. She must learn to care for him while not losing herself.

To Survive Caregiving

http://www.amazon.com/Survive-Caregiving-Daughters-Experience-Doctors/dp/0741437...

A Daughter's Experience, A Doctor's Advice on Finding Hope, Help and Health by Cheryl Woodson (Infinity Publishing)

Video Caregiving

http://videocaregiving.org/

Visual education tool for family caregivers. Real life stories to better understand and deal with caregiving situations.

Well Spouse Association

http://www.wellspouse.org/

The Well Spouse Association site designed for caregivers who are caring for a spouse. Support husbands, wives and partners of ill and/or disabled.

800-838-0879

Your Eldercare Consultants

https://caregivinghelp.org/learn-about-us/geriatric-care-management-team

Your Eldercare Consultants are experts in caregiving. The staff will guide you through the transitions and challenges of aging.
773 508 1015

Chicago and Illinois (18)

Chicago Department of Family & Support Services

http://www.cityofchicago.org/city/en/depts/fss.html

City of Chicago website

http://egov.cityofchicago.org/

Department of Family and Support Services
Wide range of services and programs and latest information related to older adults living in Chicago. Topics include caregiving, health, housing, finances, transportation, senior centers, volunteerism, employment and education.

The Chicago Department of Housing services can be accessed by call 311. Services include, H-Rail Program for home improvements related to safety and weatherization as well as Housing Resource Centers which help in locating affordable housing
311

CJE SeniorLife

http://www.cje.net/

Community Resources On-line

http://www.irissoft.com/cje1/

Comprehensive database designed to help Illinois residents locate services available in their neighborhood

Cook County Assessor’s Office

http://www.cookcountyassessor.com/

The Cook County Assessor’s office administers the homeowner, senior citizens, and senior citizen assessment freeze exemptions.
312.443.7550

Family Alliance, Inc.

http://www.familyallianceinc.org/

Offers adults and their families in McHenry County a range of programming and services, such as adult day, case management, support groups, counseling and transportation assistance.
815-338-3590

Illinois Assistive Technology Project

http://www.iltech.org/

Information and assistance with assistive technology, programs and online classified ads

Illinois Department of Public Health

http://www.idph.state.il.us/

Comprehensive information on variety of health issues and programs in Illinois.
800-782-7860

Illinois Department of Public Health: Nursing Homes

http://www.idph.state.il.us/healthca/nursinghometestjava.htm

Guidelines for selecting a nursing home and a listing and description of nursing homes in the state.
217.782.4977

Illinois Department on Aging

http://www.state.il.us/aging

Low Income Home Energy Assistance Program

http://www.commerce.state.il.us/

LIHEAP is a federally-funded program to help eligible low-income households meet their home heating and/or cooling needs. The U.S. Administration of Children and Families' Division of Energy Assistance in the Office of Community Services administers LIHEAP at the federal level. On the local level, Community and Economic Development Association (CEDA) administer the program. You can apply for LIHEAP assistance at local social service agencies.

312.795.8844

Medicare Basics for Caregivers

http://nihseniorhealth.gov/medicarebasics/faq/faqlist.html

NIH Senior Health’s easy to use website presents Medicare and management of illness information

Northeastern Illinois Area on Aging

http://www.ageguide.org/

Serves residents of DuPage, Grundy, Kane, Kankakee, Kendall, Lake, McHenry, and Will counties. Information on local events, available resources, advocacy, and caregiver support.
800.528.2000

Northwestern University Cognitive Neurology and Alzheimer’s Disease Center

http://www.brain.northwestern.edu/

This center is located in Chicago, IL, offers visitors to the site detailed information Alzheimer’s disease and related dementias.

Rehabilitation Institute of Chicago (RIC)

http://www.ric.org/

RIC provides information on and links to many of the services it offers at its various locations throughout Chicagoland and the state of Illinois

800-354-7342

RTA Offices – Reduced Fare Cards

http://www.rtachicago.com/

Chicago Department on Aging - City Hall 312-744-4016

121 N. LaSalle, Rm 100, Chicago, IL

Terra Nova Films

http://www.terranova.org/

Produce and distribute films dedicated to aging and caregiving issues.

773-881-8491

Walgreens

http://www.walgreens.com/

Intended for use by pharmacists and provides an overview of how medications may affect geriatric patients

Disease (47)

Alzheimer's Disease Research

http://www.brightfocus.org/alzheimers/

Program of the American Health Assistance Foundation
800-437-2423

Alzheimer's Foundation of America Care Connection

http://www.alzfdn.org/Connect/careconnection.html

Free telephone support service designed for caregivers of individuals with Alzheimer's disease and related illnesses.
877-232-2992

Alzheimers.Gov

http://alzheimers.gov/

For the people helping people with Alzheimer's

Alzheimer’s Association

http://www.alz.org/

Leading voluntary health organization in Alzheimer care, support and research.

800-272-3900

Alzheimer’s Daily News

http://www.alznews.com/

Ageless Design Research Foundation updates its site each day with new articles and press releases relating to dementia

Alzheimer’s Disease Education and Referral Center

http://www.alzheimers.org/

ADEAR offers free publications and information on most aspects of Alzheimer’s disease
800-438-4380

Alzheimer’s From the Inside Out

http://www.richardtaylorphd.com/

Richard Taylor, diagnosed with Alzheimer’s disease at age 61, gives a first person look at Alzheimer’s disease. Account of his slow transformation and deterioration and the growing division between his world and the world of others. Website includes a newsletter.

AlzOnline: Alzheimer’s Caregiver Support Online

http://alzonline.phhp.ufl.edu/

AlzOnline provides presentations on issues related to caring for someone with Alzheimer’s in PowerPoint, video and/or audio as well as other educational materials.

American Cancer Society

http://www.cancer.org/

Nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
1-800-ACS-2345

American Chronic Pain Association

http://www.theacpa.org/

916-632-0922

American Diabetes Association

http://www.diabetes.org/

Mission is to prevent and cure diabetes and to improve the lives of all people affected by diabetes. Funds research, publishes scientific findings, provides information and other services to people with diabetes, their families, health professionals and the public.
800-342-2383

American Foundation for AIDS Research

http://www.amfar.org/

amfAR is dedicated to ending the global AIDS epidemic through innovative research.
800-39-AMFAR (392-6327)

American Heart Association

http://www.americanheart.org/

National voluntary health agency whose mission is: "Building healthier lives, free of cardiovascular diseases and stroke."
800-AHA-USA1 (242-8721)

American Kidney Fund

http://www.kidneyfund.org/

800-638-8299

American Liver Foundation

http://www.liverfoundation.org/

800-465-4837

American Parkinson Disease Foundation

http://www.apdaparkinson.org/

800-223-2732

American Stroke Association

http://www.strokeassociation.org/

The American Stroke Association, a division of the American Heart Association, offers a wide array of programs, products, and services designed for patients, caregivers, and professionals.
888-478-7653

Amyotrophic Lateral Sclerosis Association

http://www.alsa.org/

800-782-4747

Arthritis Foundation

http://www.arthritis.org/

800-283-7800

Brain Injury Association

http://www.bianys.org/

800-444-6443

Cancer Care

http://www.cancercare.org/

Free professional support to anyone affected by cancer.
800-813-4673

CJE SeniorLife

http://www.cje.net/

Dead Men Don't Eat Chicken, Real Stories About Caring for Parents with Dementia

http://www.deadmendonteatchicken.com/

Blog that discusses the care of a person with dementia. Here you can tell your stories, vent your frustrations, have a laugh, have a cry, share a lesson or useful tip, and learn from others going through the same thing.Also includes helpful articles on a variety of topics concerning dementia, caregiving, and taking care of yourself.

Disability.gov

https://www.disability.gov/

Encouraging Comfort Care

http://www.alzheimers-illinois.org/pti/comfort_care_guide.asp

A Guide for Families of People with Dementia Living in Care Facilities. Provided by the Alzheimer's Association-Greater Illinois Chapter.
800-272-3900

Epilepsy Foundation of America

http://www.efa.org/

800-332-1000

Guild for the Blind

http://www.second-sense.org/

Newly formed Caregiver Support Group for family, friends and caregivers of loved one who are blind or have impaired vision.
312-236-8569

Incontinence International Foundation

http://www.aboutincontinence.org/

This website provides an overview of the causes of bowel incontinence, as well as treatment and management.

KnowItAlz

http://www.knowitalz.com/

Community of caregivers looking for the bright side of a very dark disease. Provides information, resources, connections to other caregivers, and most importantly a few laughs.

Lupus Foundation of America

http://www.lupus.org/newsite/index.html

800-558-0121

Medic Alert

http://www.medicalert.org/

Not for profit alerts, including i.d. bracelets
888-633-4298

Medline

http://www.nlm.nih.gov/medlineplus/

MedlinePlus offers trusted health information from the U.S. National Library of Medicine and the National Institutes of Health

National Aphasia Association

http://www.aphasia.org/

This site provides education information about aphasia as well as a nationwide listing of support groups.

National Institute on Aging’s Tips for Alzheimer’s Caregivers

http://www.nia.nih.gov/Alzheimers

The National Institute on Aging offers tips for Alzheimer’s Caregivers with brief, bulleted lists of suggestions and resources.

Also offers "So Far Away: Twenty Questions for Long Distance Caregivers"

National Mental Health Association

http://www.nmha.org/

1-800-969-6642

National Multiple Sclerosis Society

http://www.nmss.org/

800-344-4867

National Parkinson’s Disease Foundation

http://www.parkinson.org/

This foundation site, designed for both professionals and consumers, provides information on Parkinson’s research, events, and resources.

National Spinal Cord Injury Hotline

http://www.scihotline.org/

800-526-3456

Northwestern University Cognitive Neurology and Alzheimer’s Disease Center

http://www.brain.northwestern.edu/

This center is located in Chicago, IL, offers visitors to the site detailed information Alzheimer’s disease and related dementias.

Parkinson’s Caregiver

http://www.pdcaregiver.org/

This site provides extensive testimonials from other caregivers and links to a wide variety of resources.

Parkinson’s Disease Foundation

http://www.pdf.org/

This site provides basic information about what to expect with the disease, links to other resources, and an online caregiver forum.

Rush Alzheimer’s Disease Center

http://www.rush.edu/

The Rush Alzheimer’s Disease Center, located in Chicago, IL, provides visitors with information on patient care services and educational programs.

312-942-5000

Stroke Awareness Foundation

http://www.strokeinfo.org/

Education, advocacy and awareness for stroke and its treatment.

The Art of Dementia Care

http://www.amazon.com/Art-Dementia-Care-Daniel-Kuhn/dp/140189951X/ref=cm_cr_pr_p...

Thoughtful book by Daniel Kuhen and Jane Verity from The Alzheimer’s Association

The Stroke Network

http://www.strokecaregiver.org/

Online information resources on stroke, including link to the Stroke Caregiver Handbook.

United Ostomy Association

http://www.ostomy.org/

800-826-0826

Young Parkinson’s Association

http://www.youngparkinsons.org/

The Young Parkinson’s Information & Referral Center provides information and support for Parkinson’s Sufferers who are still very active.

Driving and Transportation (4)

AARP: Driver Safety

http://www.aarp.org/home-garden/transportation/driver_safety/

Online Driving IQ test and safety classes for older drivers and lists of courses offered in your area.

American Occupational Therapy Association

http://www1.aota.org/olderdriver/index.html

Information about driving evaluation, resources for self assessments and searchable database of driving evaluation services.

National Highway Traffic Administration

http://www.nhtsa.gov/

Information on driving and aging

RTA Offices – Reduced Fare Cards

http://www.rtachicago.com/

Chicago Department on Aging - City Hall 312-744-4016

121 N. LaSalle, Rm 100, Chicago, IL

Financial (7)

City of Chicago’s Resources for Seniors and Caregivers

http://www.cityofchicago.org/city/en/depts/fss/provdrs/senior/svcs/caregiving_as...

City of Chicago programs and web-based resources including information on elder abuse, domestic violence, grandparents raising grandchildren, health, and finances.

Financial Planning Association

http://www.fpanet.org/

800-945-4237

Long Term Care Insurance

http://www.ltcfeds.com/

Sponsored by the U.S. Office of Personnel Management, provides information helpful when selecting long term care insurance

NeedyMeds

http://www.needymeds.org/

Information on medicine and healthcare assistance programs. It is not a patient assistance program, and does not supply medicine or financial assistance.

RX Assist

http://www.rxassist.org/

Database of patient assistance programs, as well as practical tools, news, and articles

RxCompare

http://maprx.info/

Medicare tool to help understand eligibility and benefits for prescription drug plans

U.S. Department of Health and Human Services

http://longtermcare.gov/

National clearing house for long-term care information for planning and financing long-term care including end of life care, and all major types of public and private financing

General (15)

AARP

http://www.aarp.org/home-family/caregiving/

National association for people over 50. Current information on most age related issues. Includes comprehensive chapter on family caregiving.

Access America for Seniors

http://www.usa.gov/

Gateway for official information and services from the U.S. government

Aging Parents and Eldercare

http://www.aging-parents-and-elder-care.com/Pages/Elder_Care_First_Steps.html

Help people overcome the challenges of eldercare through numerous informational sources

Care.com Senior Care Directory

http://www.care.com/

Resources for in-home care and elder care

Caring Today

http://www.caringtoday.com/

Website and magazine providing practical advice and knowledge for the family caregiver.

Children of Aging Parents (CAPS)

http://caps4caregivers.org/

Information and referras, support groups, resources for family caregivers
800-227-7294

CJE SeniorLife

http://www.cje.net/

DialAHuman.com

http://www.DialAHuman.com/

Website for customer service direct numbers

ElderCarelink

http://www.eldercarelink.com/

Provide free referral service for eldercare needs.

GetHuman.com

http://www.GetHuman.com/

List of customer service numbers and instructions on how to bypass automated prompts

LucyPhone.com

http://www.LucyPhone.com/

Website that connects you to number you are calling and provides option for callback from a person

Next Step In Care

http://nextstepincare.org/left_top_menu/Provider_Home/Hospital_Admissions/

Family caregivers and health care professionals work together to provide important information and advice, particularly about hospital admissions and hospital discharge.

Roslyn Carter Institute for Caregiving

http://www.rci.gsw.edu/

Educational programs, services and research for caregivers and more.

229-928-1234

Rush Generations

http://www.rush.edu/rumc/page-1112025074391.html

Rush University Medical Center program for older adults and people who care for older adults

800-757-0202

The New Old Age Blog, Jane Gross

http://topics.nytimes.com/top/reference/timestopics/people/g/jane_gross/index.ht...

Contemporary news articles by Jane Gross of The New York Times about aging, health, finances and relationships

Government (8)

Disability.gov

https://www.disability.gov/

Illinois Department of Public Health

http://www.idph.state.il.us/

Comprehensive information on variety of health issues and programs in Illinois.
800-782-7860

Medicaid: Official Government Site

http://www.medicaid.gov/index.html

Comprehensive information on Medicaid program.

Medicare Rights Center’s Home Health Care Information

http://www.MedicareRights.org/

Independent source of health care information and assistance regarding Medicare benefits and rights. Hotline. Spanish available.

Medicare: The Official Government Site

http://www.medicare.gov/

Comprehensive information on Medicare programs. Includes prescription drug program planner and drug finder.
http://www.cms.hhs.gov/home/medicare.asp

Senior Health Insurance Programs (SHIP)

https://www.shiptalk.org/

Various agencies provide SHIP health insurance counseling, as well as advocacy assistance. These agencies are trained by SHIP to offer unbiased information and assistance regarding senior’s health insurance needs. Call the 800 number for a referral to the location closest to you.

Social Security Administration (SSA)

http://ssa.gov/

The Social Security Administration processes social security retirement, disability, and supplemental security income payments, and determines entitlement to Medicare benefits. For the nearest location to your home or questions concerning your social security payments, you can call the 800 number.

1-800-772-1213

U.S. Department of Health and Human Services

http://longtermcare.gov/

National clearing house for long-term care information for planning and financing long-term care including end of life care, and all major types of public and private financing

Health and Wellness (32)

AARP: Health

http://www.aarp.org/health/

AARP’s home page, click on “Health” to access information about a variety of health conditions.

Access Living

http://www.accessliving.org/

Nonresidential Center for Independent Living for people with disabilities.

Alzheimer’s Association: Carefinder

http://www.alz.org/care/alzheimers-dementia-care-housing.asp

The Alzheimer’s Association’s Carefinder offers an interactive care planning tool for dementia caregivers.
800-272-3900
24/7

American Lung Association

http://www.lung.org/

800-LUNG-USA

Benefits CheckUp

http://www.benefitscheckup.org/

Guides users through a series of questions to determine eligibility for assistance with paying for prescription drugs, health care, utilities and other necessities

CDC National Center for Injury Prevention and Control

http://www.cdc.gov/injury/index.html

Statistics and information on avoiding falls and fractures. Bibliography of medical and academic journal articles on this topic.
800-232-4636

City of Chicago’s Resources for Seniors and Caregivers

http://www.cityofchicago.org/city/en/depts/fss/provdrs/senior/svcs/caregiving_as...

City of Chicago programs and web-based resources including information on elder abuse, domestic violence, grandparents raising grandchildren, health, and finances.

CJE SeniorLife

http://www.cje.net/

Depression and Dementia

http://alzheimers.org.uk/site/scripts/documents_info.php?documentID=139

How to distinguish between depression and possible dementia

Drug Digest

http://www.drugdigest.org/

Information about specific drugs and drug interactions, as well as recent news on drugs

Evaluating Medical Resources on the Web

http://nccam.nih.gov/health/webresources

This site provides a short guide of important questions you should consider as you look for health information online.

Fall Prevention Center of Excellence

http://stopfalls.org/index.shtml

Information on books, websites, fact sheets and services available to those wanting to know more about preventing falls.
213 - 740-1364

Family Alliance, Inc.

http://www.familyallianceinc.org/

Offers adults and their families in McHenry County a range of programming and services, such as adult day, case management, support groups, counseling and transportation assistance.
815-338-3590

Geriatric Mental Health Foundation

http://www.gmhfonline.org/gmhf/

Mental health information for older adults and their families, locate a geriatric psychiatrist, programs and events, and more

Healthfinder

http://www.healthfinder.gov/

Links to health information web sites provided by the U.S. Department of Health and Human Resources

HelpGuide.org

http://www.helpguide.org/

This site has a section on “Seniors and Aging: which provides information on a variety of health and caregiving issues.

Hospice Directory

http://www.Hospicedirectory.org/

Consumer database of for North America and the U.S.
800.868.5171

Illinois Department of Public Health

http://www.idph.state.il.us/

Comprehensive information on variety of health issues and programs in Illinois.
800-782-7860

Medicaid: Official Government Site

http://www.medicaid.gov/index.html

Comprehensive information on Medicaid program.

Medicare Rights Center’s Home Health Care Information

http://www.MedicareRights.org/

Independent source of health care information and assistance regarding Medicare benefits and rights. Hotline. Spanish available.

Medicare: The Official Government Site

http://www.medicare.gov/

Comprehensive information on Medicare programs. Includes prescription drug program planner and drug finder.
http://www.cms.hhs.gov/home/medicare.asp

My Family Health Portrait

https://familyhistory.hhs.gov/

U.S. Surgeon General’s secure tool to enter your family health history, create drawings of your family health history to share with family or health care worker and use the health history of your family to create your own.

National Hospice and Palliative Care Association

http://www.nhpco.org/

Comprehensive information on hospice and palliative care.
703.837.1500

National Library of Medicine

http://www.nlm.nih.gov/

This National Institutes of Health web site provides tips on finding health information and links to reliable health information for the public.

National Mental Health Association

http://www.nmha.org/

1-800-969-6642

NeedyMeds

http://www.needymeds.org/

Information on medicine and healthcare assistance programs. It is not a patient assistance program, and does not supply medicine or financial assistance.

RX Assist

http://www.rxassist.org/

Database of patient assistance programs, as well as practical tools, news, and articles

RxCompare

http://maprx.info/

Medicare tool to help understand eligibility and benefits for prescription drug plans

Senior Health Insurance Programs (SHIP)

https://www.shiptalk.org/

Surviving Your Spouse’s Chronic Illness

http://www.amazon.com/Surviving-Your-Spouses-Chronic-Illness/dp/0805055738/ref=s...

A Compassionate Guide by Chris McGonigle (New York, Henry Holt)

Talking with Your Doctor

http://www.nia.nih.gov/health/publication/talking-your-doctor-guide-older-people

Order a free copy of Talking to Your Doctor: A Guide For Older People

Walgreens

http://www.walgreens.com/

Intended for use by pharmacists and provides an overview of how medications may affect geriatric patients

Housing (11)

A Place for Mom

http://www.aplaceformom.com/

Free nationwide referral service that assists with finding appropriate nursing homes, assisted living and Alzheimer’s care, retirement communities and home care.

American Association of Homes and Services for the Aged

http://www.leadingage.org/

Professional association provides a national directory of nursing homes and services.

Assisted Living Federation of America

http://www.alfa.org/

Provides information about assisted living and a searchable national directory of assisted living facilities
703-894-1805

CJE SeniorLife

http://www.cje.net/

Illinois Department of Public Health: Nursing Homes

http://www.idph.state.il.us/healthca/nursinghometestjava.htm

Guidelines for selecting a nursing home and a listing and description of nursing homes in the state.
217.782.4977

Infinitec: Infinite Potential through Assistive Technology

http://www.infinitec.org/

Creative assistive technology for people with disabilities of all types, in the Illinois counties of Cook, DuPage, Lake and Kane. Home modification, recreations, exercise, travel and more suggestions and resource guides to living, learning, playing and working.
312.765.0419

National Resource Center on Supportive Housing and Home Modification

http://www.homemods.org/

Resources for home modification designed to improve caregiver and care recipient safety. Online course that provide detailed information on home modifications.

National Respite Locator

http://chtop.org/ARCH/National-Respite-Locator.html

Assists caregivers, and professionals find respite services in their state and local area to match their specific needs

National Senior Citizens Law Center

http://www.nsclc.org/

Guide to nursing home care and assisted living.

202-289-6976

U.S. Department of Health and Human Services

http://longtermcare.gov/

National clearing house for long-term care information for planning and financing long-term care including end of life care, and all major types of public and private financing

U.S. Department of Housing and Urban Development: People With Disabilities

http://portal.hud.gov/hudportal/HUD/topics/information_for_disabled_persons

Comprehensive resource for people with disabilities. Links on housing and accessibility.

Legal (10)

Advance Directive Forms

http://www.idph.state.il.us/public/books/advin.htm

Forms from the Illinois Department of Public Health including Do Not Resuscitate form. Also offers guidance.

Aging with Dignity

http://www.agingwithdignity.org/

Here you can download the "5 Wishes" is an easy to understand tool for documenting an individual’s wishes regarding medical decisions. These forms meet the legal requirements of Illinois for the living will and durable power of attorney for health care.

American Bar Association

http://www.americanbar.org/groups/law_aging.html

Legal guidance for Americans over 50 and attorney listings.
Also offers Legal Tools for Preserving Your Autonomy

Caring Connections

http://www.caringinfo.org/

Program of National Hospice and Palliative Care Organization that provides resources and information on palliative care, end-of-life care, including hospice, caregiving, advance directives, as well as pain, grief, workplace issues and financial planning.
703-837-1500

Family Medical Leave Act

http://www.dol.gov/whd/fmla/

Eligibility for leave to care for an immediate family member (spouse, child, or parent) with a serious health condition

Health Care Advance Planning

http://www.americanbar.org/groups/law_aging.html

Consumers’ Toolkit developed by the American Bar Association. Help make appropriate decisions and communicate with others regarding preferences.

Johnson and Johnson Money and Insurance

http://www.strengthforcaring.com/money-insurance/index.html

Information on legal, financial and end of life issues

National Academy of Elder Law Attorneys

http://www.naela.org/

Professional association offers a nationwide “Locate an Elder Law Attorney” tool as well as general information about Elder Law. Dedicated to improving the quality of legal services provided to seniors and people with special needs.
703-942-5711

National Senior Citizens Law Center

http://www.nsclc.org/

Guide to nursing home care and assisted living.

202-289-6976

United States Living Will Directory

http://www.uslivingwillregistry.com/

Stores your advance directive electronically and makes it available 24 hours a day to health care providers and family. One time fee but often free or discounted.

Social Services (7)

City of Chicago’s Resources for Seniors and Caregivers

http://www.cityofchicago.org/city/en/depts/fss/provdrs/senior/svcs/caregiving_as...

City of Chicago programs and web-based resources including information on elder abuse, domestic violence, grandparents raising grandchildren, health, and finances.

CJE SeniorLife

http://www.cje.net/

Low Income Home Energy Assistance Program

http://www.commerce.state.il.us/

312.795.8844

National Adult Day Services

http://www.nadsa.org/

National directory of adult day services.
877-745-1440

Senior Services Associates, Inc.

http://www.seniorservicesassoc.org/

Access to social services, events, links, and activities for seniors in Kane, Kendall and McHenry counties.

800-339-3200

Social Security Administration (SSA)

http://ssa.gov/

1-800-772-1213

Your Eldercare Consultants

https://caregivinghelp.org/learn-about-us/geriatric-care-management-team

Your Eldercare Consultants are experts in caregiving. The staff will guide you through the transitions and challenges of aging.
773 508 1015

Technology (6)

Able Data

http://www.abledata.com/

Able Data
Technology resources
800-227-0216

Center for Assistive Technology

http://www.assistivetech.net/

Center for Assistive Technology
404-894-4960

Disability.gov

https://www.disability.gov/

Illinois Assistive Technology Project

http://www.iltech.org/

Information and assistance with assistive technology, programs and online classified ads

Infinitec: Infinite Potential through Assistive Technology

http://www.infinitec.org/

Medic Alert

http://www.medicalert.org/

Not for profit alerts, including i.d. bracelets
888-633-4298

Unclassified (5)

For Caregivers: Handbook and Resource Guide

http://www.agingcarefl.org/caregiver

This handbook focuses on four stages of caregiving, and provides suggestions to help you as you move through each of the stages.

From Caregiver to Caregiver

http://www.amazon.com/Caregiver-How-Cope/dp/1556739761/ref=sr_1_1?ie=UTF8&amp%3B...

How to Cope by James Unger (CSS Publishing)

Hospice Foundation of America

http://www.hospicefoundation.org/

Educational materials on the process of dying, grief, caregiving and loss.
800.854.3402

Hospital Companions, Inc.

http://hospitalcompanions.com/

Provide bedside companion with comfort and support and non-medical assistance in collaboration with medical staff in hospital, rehabilitation and nursing home.
877-502-6672

I’ll Take Care of You

http://www.amazon.com/Ill-Take-Care-You-Caregivers/dp/1572241659/ref=sr_1_1?ie=U...

Practical Guide for Family Caregivers by Joseph Ilardo and Carole Rothman (Oakland CA New Harbinger)

Resource Directory

Administration on Aging

Age Options

AGS Foundation for Health in Aging

American Association for Geriatric Psychiatry

American Geriatric Foundation

Chicago Department of Family & Support Services

CJE Senior­Life

Cook County Assessor’s Office

Eldercare Locator U.S. Ad­ministration on Aging

ElderCarelink

Illinois Department on Aging

Life Matters Media

National Institute of Health Senior Health

Northeastern Illinois Area on Aging

Talking with Your Doctor

Thirdage.com

AARP: Caregiving Resource Center

AgingCare.com

AGIS Network

Always On Call

Alzheimer’s Association: Carefinder

American Medical Association Guide to Home Caregiving

American Red Cross

ARCH National Respite Network and Resource Center

Caregiver Cornnerstone

Caregiver Online Group

Caregiver Survival Resources

Caregiver.com

Caregiverstress.com

Caregiving 101

Caregiving.com

Careguide.com

CarePages

Caring for Yourself While Caring for Others

Caring for Yourself While Caring for Your Aging Parents

Caring From a Distance

Caring.com

Center for Assistive Technology

City of Chicago’s Resources for Seniors and Care­givers

CJE Senior­Life

Coalition of Limited English Speaking Elderly

Disability.gov

Empowering Caregivers

Family Caregiver

Family Caregiver Alliance

Family Medical Leave Act

Familycare America

Full Circle of Care

Healthy Caregiver

HelpGuide.org

If Only I’d Had This Caregiving Book

Johnson and Johnson’s Strength for Caring

LGBT Caring Community Online Support Group

Lotsa Helping Hands

Medic Alert

Medicare Basics for Caregivers

National Adult Day Services

National Alliance for Caregiving

National Association of Professional Geriatric Care Managers

National Institute on Aging’s Tips for Alzheimer’s Caregivers

National Private Duty Association

Parkinson’s Caregiver

Roslyn Carter Institute for Caregiving

Rush Generations

Share the Care

Surviving Your Spouse’s Chronic Illness

The Carebook

The Caregiver’s Home Companion

The Caregiver’s Survival Handbook

The Fearless Caregiver

The Labryinth of Caregiving

The Resourceful Caregiver

To Love What Is: A Marriage Transformed

To Survive Caregiving

Video Caregiving

Well Spouse Association

Your Eldercare Consultants

Chicago Department of Family & Support Services

City of Chicago website

CJE SeniorLife

Eldercare Locator U.S. Administration on Aging

City of Chicago’s Resources for Seniors and Caregivers

CJE SeniorLife

CJE SeniorLife

CJE SeniorLife

City of Chicago’s Resources for Seniors and Caregivers